It’s Not the Same

And while I’ve been struggling to put my finger on what’s going on, I’m okay with whatever is going on.

I’ve been back at work for a month now after my double mastectomy and this time going back, it’s been so hard. I saw a quote the other day that said “After breast cancer, my job had not changed. I had.”

I don’t think anything has resonated so much with me in my life. WOW! My job is, or was, my dream job.

I literally remember sitting in college and said, “my dream job would be becoming a Paralegal for a state-wide nonprofit helping victims of some sort.” I have that job and man, I was on top of the world when I got it.

I don’t hate my work or what I do. It’s just hard to go back and try to pick up where I left off. I work in a profession that is fast-pace and I cannot keep up, right now. (I really wish I could). I’m on calls with survivors of sexual assault, harassment, rape, seeing if our attorneys can help them. It’s emotionally taxing, if you could even begin to imagine. Vicarious trauma is a real thing everyone.

While I’m sitting here, crying internally because I wish I could just quit my job and figure life [without cancer] out, I’m okay with this feeling. I’m not sure where I’m going. I know I’ll be finishing up my second degree at the end of the year and maybe by then I’ll find my true calling.

My love for advocacy hasn’t stopped. My love as a Paralegal hasn’t stopped. But damn has Breast Cancer made me doublethink everything.

xx Kelsey

Sex and Chemo: What Could Be So Bad? (NSFW)

I’m going to mark this as NSFW just because I am talking about sex.

When I was first diagnosed with Breast Cancer, I did a lot of research… like too much research.  One common theme I kept on seeing pop-up was sex during treatment, what chemo does to your sex drive, yadda yadda.  Now I have a high sex drive so for me to see this, I rolled my eyes and was like, “no way chemo is going to affect my sex drive.”

Chemo drugs actually damage nerves and muscles involved in feeling pleasure from touch or reaching orgasms.  Chemo drugs can also make sex painful if you are not properly lubricated because of the dryness.

~and the kicker~ Some chemo drugs actually put woman in a “menopausal state.”  The side effects are exactly the same as a woman going through menopause; irregular periods or none at all, damage to your ovaries, dryness of the vaginal area, tightness of your vagina walls, emotional changes, hot flashes and so forth.

I can say though that even if chemo affects your sex drive, I haven’t had issues BUT after my last round of A/C, I experienced the most painful sex, followed by small cuts around my vagina because of it being dry (and a fun visit to my OBGYN). And besides that, I’m relieved it was only that because sex is very important for the human body.  There are so many benefits.

Some of the positive affects of sex include, boosting your libido, lowers blood pressure, it counts as exercise, improves sleep and decreases stress, improves intimacy and relationships.  I’m sure I’m missing some other benefits but you get the point.  And because Cancer strips away a lot of things from you, to actually have control over something is amazing and mentally and physically, sooooooo beneficial to me, and I’m sure others who are in my position and feel the same.

If you have been recently diagnosed with cancer, please talk with your Oncologist about what chemo, radiation, surgery can do to your sex drive, if it’s important to you.  My doctor never brought it up until I did, and I don’t think it was intentionally on her part.  It’s something most people aren’t worried about but I think it’s important to understand and know what your treatment is going to do to affect all aspects of your daily life.

xx Kelsey

Knock, knock.

May 28th was like any other day. I woke up too damn early and marched myself to the bathroom so I could shower. As I was washing myself, my hand moved over my right breast, and I froze. I went over the lump maybe 10 times before I was like “okay, there’s really something there.” I immediately broke down in tears. I don’t think I’ve ever been that scared in my life.

I hopped out of the shower and called my mom immediately. I don’t even think I made a cohesive sentence before she said “call your obgyn and schedule with her.”

I called and they said my obgyn wasn’t available but so-so is. I obviously took the appointment because who gives a shit at this point. I just needed to know what was going on. I eventually made it to my appointment and had my breast exam. The doctor informed me she was going to send me to get an ultrasound done.

The day of my ultrasound, I was pretty nervous, but I was super optimistic. We did the ultrasound and the tech kept on saying that it looks fine, “I doubt the doctor will want you to do a mammogram.” Well wouldn’t you know, the doctor wanted to do a mammogram. So I did that and as I was waiting for the doctor to look over it, I was just hoping I didn’t have to get that dang biopsy done; that would be the next step.

The nurse comes out, calls my name, and pulls me into the room. As I sat down, I just knew he wanted to test this bad-boy (my tumor) out. I mean hell, I was only 25 and BC runs in my family. Better be safe than sorry, right? He told me it was a calcification buildup and that we need to do the biopsy.

I left the office in tears. How was I going to manage to get through the next two weeks without crying every hour? In those two weeks, I don’t think I’ve ever cried that much. But crying is okay, and sometimes we need that safe-space to let out our emotions.

Biopsy day rolled around and hell, I was so damn nervous. I did an ultra-sound needle guided biopsy which was absolute torture. Not that you can avoid breast cancer, but out of all the testing I did, that was the worse and wish I didn’t have to do that.

June 19th came and I finally got the call. I was told I have Ductal Carcinoma In Situ (DCIS). I started crying like a bitch on the phone. I mean I was really scared for my life.

This was my first diagnosis. DCIS is a non-invasive cancer that starts in the milk ducts. It is typically diagnosed as Stage 0. So although it was horrible to hear I had cancer, I was hopeful. I wouldn’t have to do chemo! I could get my bilateral mastectomy and reconstruction and close this chapter in a few short months.

After my diagnosis, I met with my breast surgeon; my appointment was a big blur. I went into auto-pilot and all I heard was “cancer.” Thank God my mom was with me because she had to repeat everything over. What my breast surgeon was concerned about was my tests were showing I was negative for progesterone and estrogen. If I would test negative for the HER2 Protein, then that would change my diagnosis.

Quick lesson: Estrogen, progesterone and HER2 Protein are the three most common receptors known to fuel breast cancer growth. Because the tumor cells lack the receptors, treatments such as hormone therapy and drugs that target these receptors are ineffective. This leaves chemotherapy as the only option for treatment. Good thing is, #TNBC sometimes responds better to chemo in earlier stages than other forms of cancer.

After meeting with her and more testing was done (CT scans, bone scans, MRI, etc.), on July 10th, I had my partial mastectomy to get the tumor out of me and to finally test it for the HER2 Protein.

Although I went into this thing being optimistic, as the weeks rolled and testing was done, my hope was fading away. Everything triggered me. I could barely talk about the “c” word without a lump forming in my throat. I was devastated and just kept asking myself “why me?” “why can’t I go a year without shit hitting the fan?”

My breast surgeon finally called me (7/17) and let me know that my diagnosis was now Triple Negative Breast Cancer. My new diagnosis was more “aggressive” and required chemo (YAY)! What was supposed to be a quick fix, turned into a treatment plan I didn’t want to face.

Chemo has been a tough pill to swallow for me but I know I’ll be okay. It will all be okay. Through everything so far, I’ve [really] learned to take one day at a time and not to worry about what’s going to happen tomorrow. (I’m still working on that, btw).

xx Kelsey